Report composed by Alison Thomas To begin, so sorry to anyone whose picture isn’t on here, the clinic was so busy there was never a dull moment! The 11th PAWS-GIST Clinic took place on the 1st December 2017 with a welcome meal on the evening of the 30th November. There were 4 new patients attending […]

Report composed by GSUK Trustee – Stella Turner On 24th & 25th August eight patients from across the UK attended the tenth PAWS-GIST clinic, held at Addenbrookes Hospital in Cambridge. For some this was the first clinic they had attended while others were ‘old hands’ able to provide advice and reassurance to the new comers […]

We hosted two PAWS-GIST clinics at Addenbrookes Hospital in Cambridge  – Clinic 6 (November 2015) and Clinic 7 (June 2016). Patients travel from all corners of the UK to attend the PAWS-GIST clinic at Addenbrookes Hospital in Cambridge. Last month, seven new patients came to our 7th clinic following on from the six who joined […]

Since the PAWS-GIST clinics started in March 2014, to-date there have been five clinics, attended by 33 patients. Last week six new PAWS-GIST patients and their families joined us at Addenbrookes Hospital in Cambridge, UK for our 5th Clinic. It was a privilege to meet with everyone, half of whom had travelled from their homes […]

Addenbrookes Hospital in Cambridge hosted the 4th Paediatric, Adolescent, Wild-type and Syndromic GIST clinic on 17th April 2015. This clinic welcomed five patients, x3 female and x2 males and their carers. We enjoyed the welcome dinner on the Thursday evening and began to learn about how each patient has been coping since their diagnosis.

18th March 2015 ~ GIST Support UK’s #100000voices Campaign hits target! Our #100000voices campaign beat the target number yesterday and currently stands at 101,304! We are still working to re-instate regorafenib to the CDF for GIST patients but this initial milestone has now been achieved. Thank you for your support!

Please sign & share our e-petition We need 100,000 signatures. #100,000voices We are trying to get 100,000 signatures on our e-petition to get regorafenib re-instated to the cancer drugs fund. Click here to sign the petition and add your voice. Please take two quick minutes to add your voice to the petition and become one of the […]

The third Paediatric, Adolescent, Wild-type and Syndromic GIST clinic was held at Addenbrookes Hospital, Cambridge on Friday (21st November 2014). This clinic involved six patients, x4 female and x2 males from locations across the UK. GIST Cancer UK hosted an informal welcome meal on the evening before the clinic so that we could all get […]

Liferaft Group of America presented their Global award of Excellence to Jayne Bressington, Patient Director of the PAWS-GIST Initiative for her role in bringing about a model of support for younger patients with GIST in the UK. Here’s a brief video of the presentation…