November continued to be a very exciting month for our PAWS-GIST alliance. From the NCRI awards ceremony in Glasgow we travelled south to Cambridge. Here we met with representatives from Groundwork UK and Tesco who presented us with a cheque for £10,000 which has been awarded to PAWS-GIST as a result of the “Tesco Centenary Grant Award”. This fantastic […]

We are really excited to announce that our PAWS GIST (Paediatric Adolescent Wild-type & Syndromic GIST) alliance has been awarded the National Cancer Research Institute‘s “Collaboration award”. This award recognises our unique European multidisciplinary team of patients, doctors, specialists and researchers who are collaborating to improve treatments and working to find a cure for PAWS-GIST cancer. The nominations were reviewed […]

PAWS-GIST Clinics 15 & 16 We have hosted two PAWS-GIST clinics at Addenbrookes Hospital in Cambridge so far this year, one in April and one on 6th September which was our sixteenth clinic since we opened the clinic in 2014. Eight, then seven patients and their carers attended our April and September clinics respectively, some […]

Since the start of PAWS-GIST in 2010 or aim has always been to stimulate research for improved treatments and a cure. It has taken a while as we needed first of all to set up The National GIST Tissue Bank, The PAWS-GIST clinic and then locate some researchers willing to work with us. However our […]

This weekend our PAWS-GIST clinic was recognised by Sarcoma Patients EuroNet (SPAEN) with an “Advocacy in Action” award. The awards recognise projects that take action to improve situations, and fulfil unmet medical needs. Thank you to Sarcoma Patients EuroNet (SPAEN) for recognising our work, and thank you to Dr Bulusu, our team of specialists, Addenbrookes […]

Last week we held the fourteenth PAWS-GIST clinic at Addenbrookes Hospital in Cambridge. As is customary we met for dinner on the previous evening to introduce everyone to each other in an informal environment. It was a very enjoyable evening and led us in to next days clinic on more familiar territory. During the evening […]

Report composed by Alison Thomas To begin, so sorry to anyone whose picture isn’t on here, the clinic was so busy there was never a dull moment! The 11th PAWS-GIST Clinic took place on the 1st December 2017 with a welcome meal on the evening of the 30th November. There were 4 new patients attending […]

Report composed by GSUK Trustee – Stella Turner On 24th & 25th August eight patients from across the UK attended the tenth PAWS-GIST clinic, held at Addenbrookes Hospital in Cambridge. For some this was the first clinic they had attended while others were ‘old hands’ able to provide advice and reassurance to the new comers […]

We hosted two PAWS-GIST clinics at Addenbrookes Hospital in Cambridge  – Clinic 6 (November 2015) and Clinic 7 (June 2016). Patients travel from all corners of the UK to attend the PAWS-GIST clinic at Addenbrookes Hospital in Cambridge. Last month, seven new patients came to our 7th clinic following on from the six who joined […]