Some while ago PAWS-GIST was very lucky to be awarded a “Tesco Bags of Help” grant.   Part of the grant has helped us to update our website which was originally implemented in 2014 and has been creaking at the seams…     We are delighted to be back on course, having convened three PAWS-GIST […]

We are delighted to launch GCUK’s educational video for GP’s and Primary Care Clinicians – “Diagnosing GIST”. Please see this at: Diagnosing GIST – Educational Video This training material has been developed by GP and Cancer Lead for Gloucestershire, Dr Sadaf Haque, working in collaboration with GIST Cancer UK and the UK’s leading GIST Sarcoma […]

In recent weeks, two of our GIST patient community have been featured in the news … PAWS-GIST patient Rachel Gilbert was diagnosed when she was 15 years old. In December, Rachel marked 20 years since her diagnosis with a daily video in the run up to her 20 year “cancerversary” to raise awareness of the […]

A research team at the University of Cambridge is to lead a groundbreaking study exploring genomics, in gastrointestinal stromal tumours (GISTs), with the aim of unlocking new treatment options for these sarcoma patients. Co-funders Sarcoma UK and GIST Cancer UK will jointly commit £140,000 to the project, marking the first research collaboration between the two […]

Well, it has been a momentous week for the PAWS-GIST Clinic.. On Thursday 30th September and Friday 1st October, we hosted the first clinic since November 2019 after which everything shut down when the pandemic struck… A lot has changed in that time: The hotel that we have used since 2014 has closed down, so […]

As you may remember, in September 2018, GIST Cancer UK and our specialist PAWS-GIST clinic team at Addenbrookes hospital in Cambridge, joined forces with Liferaft Group of America and world specialists as founding members of the International Paediatric and SDH deficient GIST consortium. It is GIST Awareness day on Tuesday 13th July and as part […]

Happy New Year! We have established a new partnership with RareCan which has been founded by our good friend Professor Andy Hall who was instrumental in helping us to establish the National GIST Tissue Bank for GIST research.   You will be aware that GCUK are relentless in our focus to improve treatments and outcomes […]

Today our Patient Director Jayne Bressington participated in the first of a series of RareCan discussions. In this video Jayne and Debbie Binner, Non-executive director of RareCan, discuss their personal experiences of PAWS-GIST and Ewing’s Sarcoma with Professor Andy Hall a Founder and Director of RareCan. Please watch & share this video… By joining RareCan, […]

One of the things patients and their carers tell us they most value about our Patient Meetings is having the opportunity to share experiences with other patients. So when we had to cancel some of this years Patient Meetings due to the pandemic we decided to produce some videos featuring “PAWS-GIST patients talking about their […]

In 2017 GIST Cancer UK approved a research grant application for pathologist Dr Newton Wong to undertake next generation sequencing  (NGS) of wild-type GIST’s to identify therapeutic targets. Earlier this month (July 2020) – Dr Wong’s research paper “Next generation sequencing demonstrates the rarity of short kinase variants specific to quadruple wild type gastrointestinal stromal […]