PAWS-GIST Clinics – update August 2024…

There have been two PAWS-GIST Clinics so far this year. In April six and last week eight patients, who had either registered or been referred by their doctor to attend the clinic, travelled from all corners of the UK to Cambridge. On each occasion patients met each other for the first time at the welcome […]

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13th July – International GIST Cancer Awareness Day!

Today is International GIST Cancer Awareness Day! A day dedicated to raising awareness about the existence of a type of cancer called GIST (Gastrointestinal Stromal Tumour), a type of sarcoma cancer that most of the general public and many doctors have never heard of. Raising awareness and helping more people understand the symptoms of GIST […]

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Award Nomination in Sarcoma Awareness month – Please Vote for PAWS-GIST in the JustGiving awards!

I am writing to seek your support by voting for me (Jayne Bressington) as PAWS-GIST’s representative for the JustGiving “Outstanding Commitment” award. Please share and encourage everyone in your network of friends to vote, raise awareness and help us continue to improve the outlook for patients diagnosed with these horrible cancers. PLEASE VOTE USING THIS […]

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Latest UK GIST clinical practice guidelines published in British Journal of Cancer

The British Sarcoma Group GIST specialists have been working to update the UK clinical practice guidelines for Gastrointestinal Stromal Tumour (GIST). Yesterday the consensus statement resulting from many months of work was published in the British Journal of Cancer. Please share these guidelines with doctors managing GIST patient care as well as patients. Much more […]

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14th SPAGN Annual Conference (incorporating New Horizons GIST)

Last week the 14th SPAGN Annual Conference was held in Rome. Bringing together over 100 patient advocates from 33 countries, the days were full of interesting education sessions covering all manner of subjects specific to GIST and Sarcoma including: Real-world data and its importance for drug development and re-purposing and to ensure that systems meet […]

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PAWS-GIST Spring Clinic 2024

On 11th & 12th April we held the first of this years’ PAWS-GIST clinics in Cambridge. Dr Bulusu and the specialist team were joined by oncologist Dr Georgina Wood from UCLH to consult with patients, six of whom were new to the clinic. All expressed their thanks and gratitude for the existence of and work […]

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#ESMOSarcomaAndRareCancer24

SPAGN (Sarcoma Patients Global Net) invited PAWS-GISTs Patient Director to speak about the importance of patient involvement in Health Technology Assessment (HTA), at the European Society of Medical Oncology (ESMO) conference in Switzerland, as part of the Patient Advocacy track. During the past fourteen years, Jayne has represented GIST patients in numerous NICE and Scottish […]

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