Today is International GIST Cancer Awareness Day! A day dedicated to raising awareness about the existence of a type of cancer called GIST (Gastrointestinal Stromal Tumour), a type of sarcoma cancer that most of the general public and many doctors have never heard of. Raising awareness and helping more people understand the symptoms of GIST […]

I am writing to seek your support by voting for me (Jayne Bressington) as PAWS-GIST’s representative for the JustGiving “Outstanding Commitment” award. Please share and encourage everyone in your network of friends to vote, raise awareness and help us continue to improve the outlook for patients diagnosed with these horrible cancers. PLEASE VOTE USING THIS […]

Andrew who shared his story with us last month is very excited to tell us that “TODAY” his PAWS-GIST  cancer story has hit the headlines in: The Liverpool Echo         The Mirror                           The Manchester Evening News    &       Yahoo News    “Warning […]

Thank you Vicky Rockingham MBE for sharing your amazing story and tips on how you have managed family and work life despite all the challenges presented to you since your diagnosis with SDH deficient GIST in 2007… > Read Vicky’s Story

The British Sarcoma Group GIST specialists have been working to update the UK clinical practice guidelines for Gastrointestinal Stromal Tumour (GIST). Yesterday the consensus statement resulting from many months of work was published in the British Journal of Cancer. Please share these guidelines with doctors managing GIST patient care as well as patients. Much more […]

Andrew hopes that his experiences since diagnosis in December 2019 with a rare inherited SDHB deficient GIST mutation, will inspire and offer hope to others facing the same diagnosis. > Read Andrew’s Story >> Support Andrew’s fundraiser

Last week the 14th SPAGN Annual Conference was held in Rome. Bringing together over 100 patient advocates from 33 countries, the days were full of interesting education sessions covering all manner of subjects specific to GIST and Sarcoma including: Real-world data and its importance for drug development and re-purposing and to ensure that systems meet […]

On 11th & 12th April we held the first of this years’ PAWS-GIST clinics in Cambridge. Dr Bulusu and the specialist team were joined by oncologist Dr Georgina Wood from UCLH to consult with patients, six of whom were new to the clinic. All expressed their thanks and gratitude for the existence of and work […]

SPAGN (Sarcoma Patients Global Net) invited PAWS-GISTs Patient Director to speak about the importance of patient involvement in Health Technology Assessment (HTA), at the European Society of Medical Oncology (ESMO) conference in Switzerland, as part of the Patient Advocacy track. During the past fourteen years, Jayne has represented GIST patients in numerous NICE and Scottish […]

We had an informative and interesting time at the British Sarcoma Group annual conference, which was held at the Royal Armouries in Leeds this week.     Great to see Dr Bulusu presenting an update on SDH deficient GIST from our work at the PAWS- GIST clinic.   .     In a later session […]