Welcome to the PAWS-GIST Clinic Website
PAWS-GIST clinics are run by Cambridge University Hospitals Foundation Trust drawing upon GIST specialists from across the NHS.
If you are a younger and/or Wild-type GIST patient then our clinic is tailor-made for you!
The clinics are part of a centre of expertise working to understand the causes and mechanisms of Gastrointestinal Stromal Tumour in children, young people and all with wild-type GISTs. Their work aims to improve treatment, provide highly specialised care plans and find a cure for this rare form of cancer.
What Is PAWS GIST? Jayne Bressington explains...
Who We Are
♦ A network of patients, carers, and world leading PAWS-GIST specialists♦ We work with National/International groups, to promote best practice♦ We are here to be with you & help you as you come to terms with living with PAWS-GIST
Read moreWhat We Do
♦ Support Patients living with PAWS-GIST cancer♦ Provide Information for PAWS-GIST patients♦ Fund & Stimulate Research♦ Raise awareness of PAWS-GIST cancer
Read moreSupport Us
♦ Raise funds for Research & Patient Support♦ Raise awareness of PAWS-GIST♦ "Like" us on Facebook / "Follow" us on Twitter
Read moreAwards & Recognition
PAWS-GIST has received the following Awards in recognition of our work... ★ National Cancer Research Institute's 2019 Collaboration Excellence Award. ★ The Life Raft Group's 2014 Global Award of Excellence
Read moreNEWS: recent posts
13th July – International GIST Cancer Awareness Day!
Today is International GIST Cancer Awareness Day! A day dedicated to raising awareness about the existence of a type of cancer called GIST (Gastrointestinal Stromal Tumour), a type of sarcoma cancer that most of the general public and many doctors have never heard of. Raising awareness and helping more people understand the symptoms of GIST […]
Award Nomination in Sarcoma Awareness month – Please Vote for PAWS-GIST in the JustGiving awards!
I am writing to seek your support by voting for me (Jayne Bressington) as PAWS-GIST’s representative for the JustGiving “Outstanding Commitment” award. Please share and encourage everyone in your network of friends to vote, raise awareness and help us continue to improve the outlook for patients diagnosed with these horrible cancers. PLEASE VOTE USING THIS […]
Andrew’s PAWS-GIST story headlines in “Liverpool Echo, Manchester Evening News, The Mirror and Yahoo News!”
Andrew who shared his story with us last month is very excited to tell us that “TODAY” his PAWS-GIST cancer story has hit the headlines in: The Liverpool Echo The Mirror The Manchester Evening News & Yahoo News “Warning […]
Vicky – my PAWS-GIST story started in 2007…
Thank you Vicky Rockingham MBE for sharing your amazing story and tips on how you have managed family and work life despite all the challenges presented to you since your diagnosis with SDH deficient GIST in 2007… > Read Vicky’s Story
Latest UK GIST clinical practice guidelines published in British Journal of Cancer
The British Sarcoma Group GIST specialists have been working to update the UK clinical practice guidelines for Gastrointestinal Stromal Tumour (GIST). Yesterday the consensus statement resulting from many months of work was published in the British Journal of Cancer. Please share these guidelines with doctors managing GIST patient care as well as patients. Much more […]
PAWS-GIST patient Andrew, has asked us to share his story far and wide…
Andrew hopes that his experiences since diagnosis in December 2019 with a rare inherited SDHB deficient GIST mutation, will inspire and offer hope to others facing the same diagnosis. > Read Andrew’s Story >> Support Andrew’s fundraiser
14th SPAGN Annual Conference (incorporating New Horizons GIST)
Last week the 14th SPAGN Annual Conference was held in Rome. Bringing together over 100 patient advocates from 33 countries, the days were full of interesting education sessions covering all manner of subjects specific to GIST and Sarcoma including: Real-world data and its importance for drug development and re-purposing and to ensure that systems meet […]
PAWS-GIST Spring Clinic 2024
On 11th & 12th April we held the first of this years’ PAWS-GIST clinics in Cambridge. Dr Bulusu and the specialist team were joined by oncologist Dr Georgina Wood from UCLH to consult with patients, six of whom were new to the clinic. All expressed their thanks and gratitude for the existence of and work […]
#ESMOSarcomaAndRareCancer24
SPAGN (Sarcoma Patients Global Net) invited PAWS-GISTs Patient Director to speak about the importance of patient involvement in Health Technology Assessment (HTA), at the European Society of Medical Oncology (ESMO) conference in Switzerland, as part of the Patient Advocacy track. During the past fourteen years, Jayne has represented GIST patients in numerous NICE and Scottish […]
PAWS-GIST presented at the British Sarcoma Group conference 2024 in Leeds
We had an informative and interesting time at the British Sarcoma Group annual conference, which was held at the Royal Armouries in Leeds this week. Great to see Dr Bulusu presenting an update on SDH deficient GIST from our work at the PAWS- GIST clinic. . In a later session […]
Next PAWS-GIST Clinic
Where: Cambridge
When: 9th August 2024
We are delighted to invite applications to our next PAWS-GIST clinics.
Please Register to Attend.
We look forward to seeing you!
- 6th December 2024
Info for Clinicians & Nurses
The UK clinic for the rare subtypes of GISTs has been operating since 2014. The national consortium of specialists are here to provide advice and guidance to support you and your patients.
Presently, we run three clinics a year where we review the pathology, molecular profiling, imaging and the management of the patients. The clinic also offers genetic testing and counselling for those GIST patients who may harbour a germline variant.
The clinic also serves as a platform for research and clinical trials. We work in collaboration with international experts in developing more effective treatments.
Research
We are extremely fortunate to have GIST specialists and researchers in the UK who dedicate their lives to improving treatments and finding a cure for GIST. The link below will take you to current research projects..
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