PAWS-GIST Clinic News
Please see the latest news, research and findings below...
Report from the PAWS-GIST Clinic 6th Sept 2019 – Addenbrookes Hospital
PAWS-GIST Clinics 15 & 16 We have hosted two PAWS-GIST clinics at Addenbrookes Hospital in Cambridge so far this year, one in April and one on 6th September which was our sixteenth clinic since we opened the clinic in 2014. Eight, then seven patients and their carers attended our April and September clinics respectively, some […]
Continue reading →Research Initiatives July 2019
Since the start of PAWS-GIST in 2010 or aim has always been to stimulate research for improved treatments and a cure. It has taken a while as we needed first of all to set up The National GIST Tissue Bank, The PAWS-GIST clinic and then locate some researchers willing to work with us. However our […]
Continue reading →PAWS-GIST Clinic receives the Sarcoma Patients EuroNet (SPAEN) “Advocacy in Action” Award
This weekend our PAWS-GIST clinic was recognised by Sarcoma Patients EuroNet (SPAEN) with an “Advocacy in Action” award. The awards recognise projects that take action to improve situations, and fulfil unmet medical needs. Thank you to Sarcoma Patients EuroNet (SPAEN) for recognising our work, and thank you to Dr Bulusu, our team of specialists, Addenbrookes […]
Continue reading →PAWS-GIST Clinic 14 – December 2018
Last week we held the fourteenth PAWS-GIST clinic at Addenbrookes Hospital in Cambridge. As is customary we met for dinner on the previous evening to introduce everyone to each other in an informal environment. It was a very enjoyable evening and led us in to next days clinic on more familiar territory. During the evening […]
Continue reading →PAWS-GIST Clinic 11 – December 2017
Report composed by Alison Thomas To begin, so sorry to anyone whose picture isn’t on here, the clinic was so busy there was never a dull moment! The 11th PAWS-GIST Clinic took place on the 1st December 2017 with a welcome meal on the evening of the 30th November. There were 4 new patients attending […]
Continue reading →PAWS-GIST Clinic 10 – August 2017
Report composed by GSUK Trustee – Stella Turner On 24th & 25th August eight patients from across the UK attended the tenth PAWS-GIST clinic, held at Addenbrookes Hospital in Cambridge. For some this was the first clinic they had attended while others were ‘old hands’ able to provide advice and reassurance to the new comers […]
Continue reading →New UK Clinical Practice Guidelines – May 2017
Clinical Sarcoma Research New UK Clinical Practice Guidelines for the management of gastrointestinal stromal tumours (GIST) published by British Sarcoma Group reference PAWS-GIST Clinic. >> Please click: UK Clinical Practice Guidelines Document (pdf document)
Continue reading →PAWS-GIST Clinic 6 (Nov 2015) and Clinic 7 (Jun 2016)
We hosted two PAWS-GIST clinics at Addenbrookes Hospital in Cambridge – Clinic 6 (November 2015) and Clinic 7 (June 2016). Patients travel from all corners of the UK to attend the PAWS-GIST clinic at Addenbrookes Hospital in Cambridge. Last month, seven new patients came to our 7th clinic following on from the six who joined […]
Continue reading →PAWS-GIST Clinic 5 – August 2015
Since the PAWS-GIST clinics started in March 2014, to-date there have been five clinics, attended by 33 patients. Last week six new PAWS-GIST patients and their families joined us at Addenbrookes Hospital in Cambridge, UK for our 5th Clinic. It was a privilege to meet with everyone, half of whom had travelled from their homes […]
Continue reading →PAWS-GIST Clinic 4 – April 2015
Addenbrookes Hospital in Cambridge hosted the 4th Paediatric, Adolescent, Wild-type and Syndromic GIST clinic on 17th April 2015. This clinic welcomed five patients, x3 female and x2 males and their carers. We enjoyed the welcome dinner on the Thursday evening and began to learn about how each patient has been coping since their diagnosis.
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