PAWS-GIST Clinic News


Please see the latest news, research and findings below...

£140,000 boost for GIST cancer research from Sarcoma UK and GIST Cancer UK

A research team at the University of Cambridge is to lead a groundbreaking study exploring genomics, in gastrointestinal stromal tumours (GISTs), with the aim of unlocking new treatment options for these sarcoma patients. Co-funders Sarcoma UK and GIST Cancer UK will jointly commit £140,000 to the project, marking the first research collaboration between the two […]

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PAWS-GIST Clinic – October 2021

Well, it has been a momentous week for the PAWS-GIST Clinic.. On Thursday 30th September and Friday 1st October, we hosted the first clinic since November 2019 after which everything shut down when the pandemic struck… A lot has changed in that time: The hotel that we have used since 2014 has closed down, so […]

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Invitation for Paediatric and SDH deficient GIST patients…

As you may remember, in September 2018, GIST Cancer UK and our specialist PAWS-GIST clinic team at Addenbrookes hospital in Cambridge, joined forces with Liferaft Group of America and world specialists as founding members of the International Paediatric and SDH deficient GIST consortium. It is GIST Awareness day on Tuesday 13th July and as part […]

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RareCan discuss the barriers to rare cancer research and the potential for doing things differently with PAWS-GIST patient director Jayne Bressington

Today our Patient Director Jayne Bressington participated in the first of a series of RareCan discussions. In this video Jayne and Debbie Binner, Non-executive director of RareCan, discuss their personal experiences of PAWS-GIST and Ewing’s Sarcoma with Professor Andy Hall a Founder and Director of RareCan. Please watch & share this video… By joining RareCan, […]

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GCUK PAWS-GIST funded research published in The Journal of Clinical Pathology

In 2017 GIST Cancer UK approved a research grant application for pathologist Dr Newton Wong to undertake next generation sequencing  (NGS) of wild-type GIST’s to identify therapeutic targets. Earlier this month (July 2020) – Dr Wong’s research paper “Next generation sequencing demonstrates the rarity of short kinase variants specific to quadruple wild type gastrointestinal stromal […]

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New cancer drug Entrectinib (Rozlytrek) approved for Cancer Drug Fund in England

We are very pleased to hear that NICE has approved the Roche drug Entrectinib (Rozlytrek), for use via the Cancer drug fund (CDF) in England by adults and children 12 years and older, who have advanced NTRK (Neurotrophic Tyrosine Receptor Kinase) fusion-positive solid tumours and no satisfactory treatment options. Eligible patients will have access to […]

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New Cancer drug Larotrectinib (Vitrakvi) approved for Cancer Drug Fund in England

We are very pleased to announce that NICE has approved the Bayer drug Larotrectinib (Vitrakvi) for use via the Cancer drug fund (CDF) in England for adults and children who have failed other treatment options and whose tumours test positively for the rare NTRK fusion (Neurotrophic Tyrosine Receptor Kinase fusion). Described as an histology agnostic […]

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