PAWS-GIST Clinic News

Please see the latest news, research and findings below...

Latest UK GIST clinical practice guidelines published in British Journal of Cancer

The British Sarcoma Group GIST specialists have been working to update the UK clinical practice guidelines for Gastrointestinal Stromal Tumour (GIST). Yesterday the consensus statement resulting from many months of work was published in the British Journal of Cancer. Please share these guidelines with doctors managing GIST patient care as well as patients. Much more […]

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14th SPAGN Annual Conference (incorporating New Horizons GIST)

Last week the 14th SPAGN Annual Conference was held in Rome. Bringing together over 100 patient advocates from 33 countries, the days were full of interesting education sessions covering all manner of subjects specific to GIST and Sarcoma including: Real-world data and its importance for drug development and re-purposing and to ensure that systems meet […]

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PAWS-GIST Spring Clinic 2024

On 11th & 12th April we held the first of this years’ PAWS-GIST clinics in Cambridge. Dr Bulusu and the specialist team were joined by oncologist Dr Georgina Wood from UCLH to consult with patients, six of whom were new to the clinic. All expressed their thanks and gratitude for the existence of and work […]

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SPAGN (Sarcoma Patients Global Net) invited PAWS-GISTs Patient Director to speak about the importance of patient involvement in Health Technology Assessment (HTA), at the European Society of Medical Oncology (ESMO) conference in Switzerland, as part of the Patient Advocacy track. During the past fourteen years, Jayne has represented GIST patients in numerous NICE and Scottish […]

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Patient Questionnaire – Borders should not be Barriers… Please help….

We are collaborating with EU-X-CT who are working to find ways to access clinical trials in other countries EU-X-CT is a multi-stakeholder initiative, aiming to improve patient access to clinical trials in a different country, by collecting all relevant information from EU and non-EU countries on the following aspects of cross-border access to clinical trials. […]

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PAWS-GIST Clinic – December 2023

On 1st December the third PAWS-GIST clinic of 2023 was hosted at Addenbrookes hospital in Cambridge. As is customary, the clinic was preceded by a welcome dinner on Thursday evening. An opportunity for patients and their families to meet in a relaxed setting, ready to carry-on new friendships the next day.         […]

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