Since the PAWS-GIST clinics started in March 2014, to-date there have been five clinics, attended by 33 patients. Last week six new PAWS-GIST patients and their families joined us at Addenbrookes Hospital in Cambridge, UK for our 5th Clinic. It was a privilege to meet with everyone, half of whom had travelled from their homes […]

Addenbrookes Hospital in Cambridge hosted the 4th Paediatric, Adolescent, Wild-type and Syndromic GIST clinic on 17th April 2015. This clinic welcomed five patients, x3 female and x2 males and their carers. We enjoyed the welcome dinner on the Thursday evening and began to learn about how each patient has been coping since their diagnosis.

18th March 2015 ~ GIST Support UK’s #100000voices Campaign hits target! Our #100000voices campaign beat the target number yesterday and currently stands at 101,304! We are still working to re-instate regorafenib to the CDF for GIST patients but this initial milestone has now been achieved. Thank you for your support!

Please sign & share our e-petition We need 100,000 signatures. #100,000voices We are trying to get 100,000 signatures on our e-petition to get regorafenib re-instated to the cancer drugs fund. Click here to sign the petition and add your voice. Please take two quick minutes to add your voice to the petition and become one of the […]

The third Paediatric, Adolescent, Wild-type and Syndromic GIST clinic was held at Addenbrookes Hospital, Cambridge on Friday (21st November 2014). This clinic involved six patients, x4 female and x2 males from locations across the UK. GIST Cancer UK hosted an informal welcome meal on the evening before the clinic so that we could all get […]

Liferaft Group of America presented their Global award of Excellence to Jayne Bressington, Patient Director of the PAWS-GIST Initiative for her role in bringing about a model of support for younger patients with GIST in the UK. Here’s a brief video of the presentation…

Wild-life Photographer Charlie Hamilton-James & Businessman James Crawford have produced a charity calendar in aid of PAWS-GIST. (Paediatric, Adolescent, Wild-type & Syndromic-GIST cancer). PAWS-GIST patron “Charlie”, photojournalist and presenter has donated 12 of his fabulous wild-life photos. James & Touchpoint Change Consultants who are PAWS-GIST supporters, have funded 500 copies of the PAWS-GIST Calendar for […]

Further to the launch of the Paediatric, Adolescent, Wild-type and Syndromic GIST clinic at Addenbrookes Hospital Cambridge UK, earlier this year we are pleased to report that the second clinic happened earlier this month (August 2014). The second clinic involved seven female patients, x5 in the range 16 -25 and x2 aged 25 plus, from […]

As part of the effort to create our PAWS-GIST clinic in the UK it was concluded that a National GIST tumour bank would be needed so that any research team considering work on GIST can have a central place to apply for this rare raw material. Professor Andrew Hall, Director of the Northern Institute for […]

‘BBC/walltowall’ ‘Christina Marie finalist form the Voice 2014 agrees to be a PAWS-GIST patron – thanks for your support Christina Marie – you’re a winner as far as we are concerned!’