The PAWS-GIST Clinic - Addenbrooke's Hospital, Cambridge UK

PAWS-GIST Clinic

We plan to hold up to three clinics each year, using each one to bring together up to 8 patients who will meet with GIST specialists from a variety of disciplines.

We will review:

  • your medical history
  • previous treatment and response to treatment
  • scans
  • tumour histopathology results (where it exists)
  • genetic/molecular analyses
  • undertake further tests, where appropriate and understand your unique situation
  • make recommendations specifically tailored to your individual needs.

Attending the clinic will allow you to meet others living with this rare cancer which in itself is an invaluable experience and collectively you will generate a wealth of information that assist the PAWS-GIST muliti-disciplinary team to discover the underlying mechanisms behind paediatric, adolescent, wild-type and syndromic GIST. 

Aim

Our goals are:

  • to examine the results that we accumulate from these clinics in order to design an innovative national treatment protocol.
  • to stimulate research to try to identify some of the genetic changes that underlie PAWS-GIST. 
  • to populate the PAWS-GIST database. As part of the National GIST database.

We will not be taking over the medical care of the patients that attend our clinics but hope to be in a position to make recommendations, based on information that we gather.  In addition, we may be able to offer services or tests and access to specialists that may not be available to you locally.

Our plan is to work in collaboration with the Consortium for Pediatric and Wildtype GIST Research (CPGR) at the NIH Clinic in Washington DC, USA, researchers in Dublin and Europe to advance research that will improve treatment and ultimately find a cure for PAWS-GIST patients.

Specialists

 

Further:

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